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Caregivers and people with disabilities: relational embodiment of stigma and concern in Egypt

This thesis explores disability as a relational model and how stigma is produced within an Egyptian domain. This study focuses not only on People with Disabilities (PWDs) but rather on their primary caregivers i.e. parents and siblings. I examine how stigma affects the relationship between caregiver...

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Main Author: Omarah, Nahla
Format: Thesis
Published: AUC Knowledge Fountain 2020
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access_status_str Open Access
author Omarah, Nahla
author_browse Omarah, Nahla
author_facet Omarah, Nahla
author_sort Omarah, Nahla
collection Thesis
dc_rights_str_mv The author retains all rights with regard to copyright. The author certifies that written permission from the owner(s) of third-party copyrighted matter included in the thesis, dissertation, paper, or record of study has been obtained. The author further certifies that IRB approval has been obtained for this thesis, or that IRB approval is not necessary for this thesis. Insofar as this thesis, dissertation, paper, or record of study is an educational record as defined in the Family Educational Rights and Privacy Act (FERPA) (20 USC 1232g), the author has granted consent to disclosure of it to anyone who requests a copy.
description This thesis explores disability as a relational model and how stigma is produced within an Egyptian domain. This study focuses not only on People with Disabilities (PWDs) but rather on their primary caregivers i.e. parents and siblings. I examine how stigma affects the relationship between caregivers and their disabled family members. I also explore how some relatives run the risk of being stigmatized themselves by association develop a "stigmaphile response". Thus, exploring the notion of concern that is inevitable in caregiver-PWD relationship and how this embodies individuals into new subjectivities under society's control. Furthermore, this thesis aims at finding a way to combat the stereotypes that arise from being associated with PWDs and also aims at shifting people's perspectives into considering that disability should not be categorized it is too diverse and many aspects which differ from one disability to the other thus cannot be categorized in to a "new gender". My goal is to help find a way to eradicate the "shame" that surrounds the word "disability" in order for individuals to be able to enjoy a quality of life without fear, blame and exclusion.
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institution American University in Cairo (Egypt)
last_indexed 2026-06-10T12:35:43.583Z
license_str Other — see source repository
provenance_str_mv Harvested via OAI-PMH from AUC Knowledge Fountain — bepress
publishDate 2020
publishDateRange 2020
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spelling oai:fount.aucegypt.edu:etds-1835 Caregivers and people with disabilities: relational embodiment of stigma and concern in Egypt Omarah, Nahla This thesis explores disability as a relational model and how stigma is produced within an Egyptian domain. This study focuses not only on People with Disabilities (PWDs) but rather on their primary caregivers i.e. parents and siblings. I examine how stigma affects the relationship between caregivers and their disabled family members. I also explore how some relatives run the risk of being stigmatized themselves by association develop a "stigmaphile response". Thus, exploring the notion of concern that is inevitable in caregiver-PWD relationship and how this embodies individuals into new subjectivities under society's control. Furthermore, this thesis aims at finding a way to combat the stereotypes that arise from being associated with PWDs and also aims at shifting people's perspectives into considering that disability should not be categorized it is too diverse and many aspects which differ from one disability to the other thus cannot be categorized in to a "new gender". My goal is to help find a way to eradicate the "shame" that surrounds the word "disability" in order for individuals to be able to enjoy a quality of life without fear, blame and exclusion. 2020-02-01T08:00:00Z thesis application/pdf https://fount.aucegypt.edu/etds/836 https://fount.aucegypt.edu/context/etds/article/1835/viewcontent/final_20draft_20thesis_20word_Nahla.pdf The author retains all rights with regard to copyright. The author certifies that written permission from the owner(s) of third-party copyrighted matter included in the thesis, dissertation, paper, or record of study has been obtained. The author further certifies that IRB approval has been obtained for this thesis, or that IRB approval is not necessary for this thesis. Insofar as this thesis, dissertation, paper, or record of study is an educational record as defined in the Family Educational Rights and Privacy Act (FERPA) (20 USC 1232g), the author has granted consent to disclosure of it to anyone who requests a copy. Theses and Dissertations AUC Knowledge Fountain Caregivers Stigma
spellingShingle Caregivers
Stigma
Omarah, Nahla
Caregivers and people with disabilities: relational embodiment of stigma and concern in Egypt
title Caregivers and people with disabilities: relational embodiment of stigma and concern in Egypt
title_full Caregivers and people with disabilities: relational embodiment of stigma and concern in Egypt
title_fullStr Caregivers and people with disabilities: relational embodiment of stigma and concern in Egypt
title_full_unstemmed Caregivers and people with disabilities: relational embodiment of stigma and concern in Egypt
title_short Caregivers and people with disabilities: relational embodiment of stigma and concern in Egypt
title_sort caregivers and people with disabilities relational embodiment of stigma and concern in egypt
topic Caregivers
Stigma
url https://fount.aucegypt.edu/etds/836
https://fount.aucegypt.edu/context/etds/article/1835/viewcontent/final_20draft_20thesis_20word_Nahla.pdf
work_keys_str_mv AT omarahnahla caregiversandpeoplewithdisabilitiesrelationalembodimentofstigmaandconcerninegypt