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Caregivers readiness to disclose HIV status : experiences and challenges of child disclosure in South Africa
Disclosure of HIV status to children is a challenging process for caregivers, as it involves discussing a highly stigmatised disease, which may cause psychological stress to a child. Despite the benefits of disclosing, rates of HIV disclosure remain low as caregivers face various obstacles preventin...
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| Format: | Thesis |
| Language: | English |
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Department of Public Health and Family Medicine
2016
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| _version_ | 1867613377694531584 |
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| access_status_str | Open Access |
| author | Tapscott, Kimberley |
| author2 | Colvin, Christopher J |
| author_browse | Colvin, Christopher J Tapscott, Kimberley |
| author_facet | Colvin, Christopher J Tapscott, Kimberley |
| author_sort | Tapscott, Kimberley |
| collection | Thesis |
| description | Disclosure of HIV status to children is a challenging process for caregivers, as it involves discussing a highly stigmatised disease, which may cause psychological stress to a child. Despite the benefits of disclosing, rates of HIV disclosure remain low as caregivers face various obstacles preventing them from disclosing, and this can have long-lasting effects on the treatment adherence of HIV-positive children. This qualitative study explored the perspectives and experiences of caregivers, in order to understand their readiness to disclose HIV status to their children, and address the factors that assist and hinder the process. Caregivers of HIV positive children (aged 5-15 years) participated in two focus group discussions (11 in each), and in-depth interviews were conducted with eight additional caregivers. Two healthcare workers and 10 NGO staff were also interviewed. Three key themes emerged from the data: caregivers' avoidance or delay of disclosure, factors related to caregivers' motivations to disclose, and caregiver's perception of child readiness for disclosure. The findings support the view that caregiver readiness is a key element of child disclosure. The research identified how caregivers can be educated about the benefits of disclosure, and be guided to take responsibility for the process. As there is a lack of context-specific and culturally-sensitive recommendations for child disclosure in South Africa, this research can be used to broaden the case base to inform the development of standardised guidelines that will assist caregivers to effectively communicate and manage the process of HIV disclosure with their children. |
| format | Thesis |
| id | oai:open.uct.ac.za:11427/20426 |
| institution | University of Cape Town (South Africa) |
| language | eng |
| last_indexed | 2026-06-10T12:35:11.284Z |
| license_str | Not specified — see source repository |
| provenance_str_mv | Harvested via OAI-PMH from UCTD — University of Cape Town Open Access Repository |
| publishDate | 2016 |
| publishDateRange | 2016 |
| publishDateSort | 2016 |
| publisher | Department of Public Health and Family Medicine |
| publisherStr | Department of Public Health and Family Medicine |
| record_format | dspace |
| source_str | UCTD — University of Cape Town Open Access Repository |
| spelling | oai:open.uct.ac.za:11427/20426 Caregivers readiness to disclose HIV status : experiences and challenges of child disclosure in South Africa Tapscott, Kimberley Colvin, Christopher J Swartz, Alison Social and Behavioural Sciences Disclosure of HIV status to children is a challenging process for caregivers, as it involves discussing a highly stigmatised disease, which may cause psychological stress to a child. Despite the benefits of disclosing, rates of HIV disclosure remain low as caregivers face various obstacles preventing them from disclosing, and this can have long-lasting effects on the treatment adherence of HIV-positive children. This qualitative study explored the perspectives and experiences of caregivers, in order to understand their readiness to disclose HIV status to their children, and address the factors that assist and hinder the process. Caregivers of HIV positive children (aged 5-15 years) participated in two focus group discussions (11 in each), and in-depth interviews were conducted with eight additional caregivers. Two healthcare workers and 10 NGO staff were also interviewed. Three key themes emerged from the data: caregivers' avoidance or delay of disclosure, factors related to caregivers' motivations to disclose, and caregiver's perception of child readiness for disclosure. The findings support the view that caregiver readiness is a key element of child disclosure. The research identified how caregivers can be educated about the benefits of disclosure, and be guided to take responsibility for the process. As there is a lack of context-specific and culturally-sensitive recommendations for child disclosure in South Africa, this research can be used to broaden the case base to inform the development of standardised guidelines that will assist caregivers to effectively communicate and manage the process of HIV disclosure with their children. 2016-07-18T12:52:02Z 2016-07-18T12:52:02Z 2016 Master Thesis Masters MPH http://hdl.handle.net/11427/20426 eng application/pdf Department of Public Health and Family Medicine Faculty of Health Sciences University of Cape Town |
| spellingShingle | Social and Behavioural Sciences Tapscott, Kimberley Caregivers readiness to disclose HIV status : experiences and challenges of child disclosure in South Africa |
| thesis_degree_str | Master's |
| title | Caregivers readiness to disclose HIV status : experiences and challenges of child disclosure in South Africa |
| title_full | Caregivers readiness to disclose HIV status : experiences and challenges of child disclosure in South Africa |
| title_fullStr | Caregivers readiness to disclose HIV status : experiences and challenges of child disclosure in South Africa |
| title_full_unstemmed | Caregivers readiness to disclose HIV status : experiences and challenges of child disclosure in South Africa |
| title_short | Caregivers readiness to disclose HIV status : experiences and challenges of child disclosure in South Africa |
| title_sort | caregivers readiness to disclose hiv status experiences and challenges of child disclosure in south africa |
| topic | Social and Behavioural Sciences |
| url | http://hdl.handle.net/11427/20426 |
| work_keys_str_mv | AT tapscottkimberley caregiversreadinesstodisclosehivstatusexperiencesandchallengesofchilddisclosureinsouthafrica |