Full Text Available
Note: Clicking the button above will open the full text document at the original institutional repository in a new window.
An exploration of disclosure and non-disclosure patterns in HIV-infected children in Cape Town, South Africa
A cross-sectional, descriptive study combining with open-ended (qualitative) interview questions with quantitative component was conducted to explore disclosure experiences of mothers and caregivers of HIV-infected children. The study was conducted with 102 parents and caregivers at a tertiary hospi...
Saved in:
| Main Author: | |
|---|---|
| Other Authors: | |
| Format: | Thesis |
| Language: | English |
| Published: |
Adolescent Health Research Institute
2019
|
| Subjects: | |
| Tags: |
No Tags, Be the first to tag this record!
|
| _version_ | 1867613259137286144 |
|---|---|
| access_status_str | Open Access |
| author | Shea, Robert F |
| author2 | Muloiwa, Rudzani |
| author_browse | Muloiwa, Rudzani Shea, Robert F |
| author_facet | Muloiwa, Rudzani Shea, Robert F |
| author_sort | Shea, Robert F |
| collection | Thesis |
| description | A cross-sectional, descriptive study combining with open-ended (qualitative) interview questions with quantitative component was conducted to explore disclosure experiences of mothers and caregivers of HIV-infected children. The study was conducted with 102 parents and caregivers at a tertiary hospital in Cape Town delivering care to 303 HIV-infected paediatric patients. The study sample included 102 participants, ranging in age from 16 years to 71 years. The sample included 73 mothers (72%), six fathers (6%), 11 foster-mothers (11%), and 12 caregivers or grandmothers (12%). The median age of participants’ children was 4 (IQR 2-8) years and ranged from five months to 16 years. Only 48 (47%) were old enough for disclosure to be possible. Disclosure or disclosure delay was associated with several factors, including the child’s age or ability to understand, anxiety and guilt about being blamed for infecting the child, fear of exposing the child to stigma, discrimination and social exclusion related to the child disclosing to others, and the hope that the child would be adherent if they understood their illness and the way in which the medication could improve their health outcomes. Only 16 (33%) of 48 participants actually disclosed the child’s HIV status. The results indicate that HIV-disclosure remains a challenging, emotionally-charged experience for mothers and caregivers. The findings of this research, and similar studies, point to the value of integrating disclosure support and planning into routine care for children and adolescents, as well as their parents and caregivers. |
| format | Thesis |
| id | oai:open.uct.ac.za:11427/29479 |
| institution | University of Cape Town (South Africa) |
| language | eng |
| last_indexed | 2026-06-10T12:33:17.409Z |
| license_str | Not specified — see source repository |
| provenance_str_mv | Harvested via OAI-PMH from UCTD — University of Cape Town Open Access Repository |
| publishDate | 2019 |
| publishDateRange | 2019 |
| publishDateSort | 2019 |
| publisher | Adolescent Health Research Institute |
| publisherStr | Adolescent Health Research Institute |
| record_format | dspace |
| source_str | UCTD — University of Cape Town Open Access Repository |
| spelling | oai:open.uct.ac.za:11427/29479 An exploration of disclosure and non-disclosure patterns in HIV-infected children in Cape Town, South Africa Shea, Robert F Muloiwa, Rudzani Maternal and Child Health A cross-sectional, descriptive study combining with open-ended (qualitative) interview questions with quantitative component was conducted to explore disclosure experiences of mothers and caregivers of HIV-infected children. The study was conducted with 102 parents and caregivers at a tertiary hospital in Cape Town delivering care to 303 HIV-infected paediatric patients. The study sample included 102 participants, ranging in age from 16 years to 71 years. The sample included 73 mothers (72%), six fathers (6%), 11 foster-mothers (11%), and 12 caregivers or grandmothers (12%). The median age of participants’ children was 4 (IQR 2-8) years and ranged from five months to 16 years. Only 48 (47%) were old enough for disclosure to be possible. Disclosure or disclosure delay was associated with several factors, including the child’s age or ability to understand, anxiety and guilt about being blamed for infecting the child, fear of exposing the child to stigma, discrimination and social exclusion related to the child disclosing to others, and the hope that the child would be adherent if they understood their illness and the way in which the medication could improve their health outcomes. Only 16 (33%) of 48 participants actually disclosed the child’s HIV status. The results indicate that HIV-disclosure remains a challenging, emotionally-charged experience for mothers and caregivers. The findings of this research, and similar studies, point to the value of integrating disclosure support and planning into routine care for children and adolescents, as well as their parents and caregivers. 2019-02-11T13:30:45Z 2019-02-11T13:30:45Z 2018 2019-02-11T10:21:02Z Master Thesis Masters MPhil http://hdl.handle.net/11427/29479 eng application/pdf Adolescent Health Research Institute Faculty of Health Sciences University of Cape Town |
| spellingShingle | Maternal and Child Health Shea, Robert F An exploration of disclosure and non-disclosure patterns in HIV-infected children in Cape Town, South Africa |
| thesis_degree_str | Master's |
| title | An exploration of disclosure and non-disclosure patterns in HIV-infected children in Cape Town, South Africa |
| title_full | An exploration of disclosure and non-disclosure patterns in HIV-infected children in Cape Town, South Africa |
| title_fullStr | An exploration of disclosure and non-disclosure patterns in HIV-infected children in Cape Town, South Africa |
| title_full_unstemmed | An exploration of disclosure and non-disclosure patterns in HIV-infected children in Cape Town, South Africa |
| title_short | An exploration of disclosure and non-disclosure patterns in HIV-infected children in Cape Town, South Africa |
| title_sort | exploration of disclosure and non disclosure patterns in hiv infected children in cape town south africa |
| topic | Maternal and Child Health |
| url | http://hdl.handle.net/11427/29479 |
| work_keys_str_mv | AT shearobertf anexplorationofdisclosureandnondisclosurepatternsinhivinfectedchildrenincapetownsouthafrica AT shearobertf explorationofdisclosureandnondisclosurepatternsinhivinfectedchildrenincapetownsouthafrica |