Full Text Available
Note: Clicking the button above will open the full text document at the original institutional repository in a new window.
Evidence-based clinical practice guidelines for communication strategies to support end-of-life decision-making by persons with Aphasia
Thesis (PhD (Augmentative and Alternative Communication))--University of Pretoria, 2025.
Saved in:
| Other Authors: | |
|---|---|
| Format: | Thesis |
| Language: | English |
| Published: |
University of Pretoria
2025
|
| Subjects: | |
| Tags: |
No Tags, Be the first to tag this record!
|
| _version_ | 1867613516392824833 |
|---|---|
| access_status_str | Open Access |
| author2 | Tonsing, Kerstin Monika |
| author_browse | Tonsing, Kerstin Monika |
| author_facet | Tonsing, Kerstin Monika |
| collection | Thesis |
| dc_rights_str_mv | © 2024 University of Pretoria. All rights reserved. The copyright in this work vests in the University of Pretoria. No part of this work may be reproduced or transmitted in any form or by any means, without the prior written permission of the University of Pretoria. |
| description | Thesis (PhD (Augmentative and Alternative Communication))--University of Pretoria, 2025. |
| format | Thesis |
| id | oai:repository.up.ac.za:2263/103296 |
| institution | University of Pretoria (South Africa) |
| language | English |
| last_indexed | 2026-06-10T12:37:23.532Z |
| license_str | Other — see source repository |
| provenance_str_mv | Harvested via OAI-PMH from UPSpace — University of Pretoria Institutional Repository |
| publishDate | 2025 |
| publishDateRange | 2025 |
| publishDateSort | 2025 |
| publisher | University of Pretoria |
| publisherStr | University of Pretoria |
| record_format | dspace |
| source_str | UPSpace — University of Pretoria Institutional Repository |
| spelling | oai:repository.up.ac.za:2263/103296 Evidence-based clinical practice guidelines for communication strategies to support end-of-life decision-making by persons with Aphasia Tonsing, Kerstin Monika alex.stipinovich@gmail.com Dada, Shakila Stipinovich, Alexandra Maria UCTD Sustainable Development Goals (SDGs) Evidence-Based Practice Aphasia Decision making Guidelines Communication Strategies Thesis (PhD (Augmentative and Alternative Communication))--University of Pretoria, 2025. Background: Everyone has the right to participate in important life decisions. This includes decisions about end-of-life, which are relevant not only to those for whom death seems imminent. Persons with aphasia (PWA) may experience communication barriers that present challenges to their participation in such decisions. With appropriate communication support, PWA may be able to participate in end-of-life decision-making. Aim: The purpose of this research was to develop evidence-based clinical practice guidelines for communication strategies to assist speech-language pathologists (SLPs) in supporting PWA to make end-of-life decisions. Method: An exploratory sequential mixed method design was implemented. Guided by the framework of evidence-based practice, the study comprised three phases. Phase 1 (exploratory phase) entailed gathering data regarding communication strategies to support end-of-life decision-making by PWA. Phase 2 (development phase) involved synthesising the information gathered in Phase 1 in developing the guidelines. In Phase 3 (evaluation phase) the guidelines were appraised. Results: The outcome of this study is evidence-based clinical practice guidelines for SLPs to use when supporting PWA to make end-of-life decisions. The guidelines comprise a list of end-of-life decisions that PWA may be confronted with to make, as well as a list of communication strategies that support the different components of the decision-making process. An indication is given of the sources of evidence from which these decisions and communication strategies were derived. A description is given of challenges and facilitators to the decision-making process, and of ways to approach difficult conversations. The guidelines were appraised to be of a high quality. Conclusion: When provided with communication support, PWA can be included in complex decision-making. With their skills in facilitating the exchange of information, SLPs are in an ideal position to support complex decision-making by PWA. By informing clinical activities, these clinical practice guidelines aim to foster optimal participation by PWA in end-of-life decision-making. Centre for Augmentative and Alternative Communication (CAAC) PhD (Augmentative and Alternative Communication) Unrestricted Faculty of Humanities SDG-03: Good health and well-being 2025-07-10T13:03:47Z 2025-07-10T13:03:47Z 2025-09 2025-07 Thesis * S2025 http://hdl.handle.net/2263/103296 10.25403/UPresearchdata.29525081 en © 2024 University of Pretoria. All rights reserved. The copyright in this work vests in the University of Pretoria. No part of this work may be reproduced or transmitted in any form or by any means, without the prior written permission of the University of Pretoria. application/pdf University of Pretoria |
| spellingShingle | UCTD Sustainable Development Goals (SDGs) Evidence-Based Practice Aphasia Decision making Guidelines Communication Strategies Evidence-based clinical practice guidelines for communication strategies to support end-of-life decision-making by persons with Aphasia |
| title | Evidence-based clinical practice guidelines for communication strategies to support end-of-life decision-making by persons with Aphasia |
| title_full | Evidence-based clinical practice guidelines for communication strategies to support end-of-life decision-making by persons with Aphasia |
| title_fullStr | Evidence-based clinical practice guidelines for communication strategies to support end-of-life decision-making by persons with Aphasia |
| title_full_unstemmed | Evidence-based clinical practice guidelines for communication strategies to support end-of-life decision-making by persons with Aphasia |
| title_short | Evidence-based clinical practice guidelines for communication strategies to support end-of-life decision-making by persons with Aphasia |
| title_sort | evidence based clinical practice guidelines for communication strategies to support end of life decision making by persons with aphasia |
| topic | UCTD Sustainable Development Goals (SDGs) Evidence-Based Practice Aphasia Decision making Guidelines Communication Strategies |
| url | http://hdl.handle.net/2263/103296 |