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The experiences of caregivers caring for patients with haemophilia in rural areas
Dissertation (MSW)--University of Pretoria, 2008.
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| Format: | Thesis |
| Language: | English |
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University of Pretoria
2013
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| _version_ | 1867613440980287488 |
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| access_status_str | Open Access |
| author2 | Sekudu, Johannah |
| author_browse | Sekudu, Johannah |
| author_facet | Sekudu, Johannah |
| collection | Thesis |
| dc_rights_str_mv | © 2008, University of Pretoria. All rights reserved. The copyright in this work vests in the University of Pretoria. No part of this work may be reproduced or transmitted in any form or by any means, without the prior written permission of the University of Pretoria. |
| description | Dissertation (MSW)--University of Pretoria, 2008. |
| format | Thesis |
| id | oai:repository.up.ac.za:2263/30675 |
| institution | University of Pretoria (South Africa) |
| language | English |
| last_indexed | 2026-06-10T12:36:11.571Z |
| license_str | Other — see source repository |
| provenance_str_mv | Harvested via OAI-PMH from UPSpace — University of Pretoria Institutional Repository |
| publishDate | 2013 |
| publishDateRange | 2013 |
| publishDateSort | 2013 |
| publisher | University of Pretoria |
| publisherStr | University of Pretoria |
| record_format | dspace |
| source_str | UPSpace — University of Pretoria Institutional Repository |
| spelling | oai:repository.up.ac.za:2263/30675 The experiences of caregivers caring for patients with haemophilia in rural areas Sekudu, Johannah zodwamo@dsd.gov.za Mosoma, Zodwa UCTD Bloeding Dissiplinêre span Maatskaplike werker Caring Caregivers Haemophilia Patient Rural areas Experinces Social worker Disciplinary team Bleeding Treatment Behandeling Platteland Ondervindings Versorging Hemofilie Pasiënt Landelike gebiede Versorgers Dissertation (MSW)--University of Pretoria, 2008. Some patients with haemophilia from rural areas miss most of their clinic appointments and visit a clinic only when the complications of haemophilia have already set in. The observations from the daily practice motivated the researcher to investigate the experiences of caregivers caring for patients with haemophilia in rural areas with the aim of making recommendations that will promote a service that is responsive to these caregivers’ actual needs. A theoretical framework was obtained by doing a literature study on haemophilia as a condition. An empirical study was also conducted on an availability sample of ten caregivers who were at the Haemophilia Clinic at the Pretoria Academic Hospital. The sample was selected from a population of caregivers who brought patients to the Haemophilia Clinic. A qualitative approach was used; in-depth interviews were conducted and recorded on an audiotape. Interviews were later transcribed for analysis and interpretation. The researcher used Creswell’s model to analyse the data. The findings of the study include internal and external experiences of the caregivers. Internal experiences relate to issues around an emotional dimension, a spiritual dimension, cultural beliefs and future considerations. External experiences relate to negative and positive experiences encountered by caregivers in dealing with different systems, namely the health system, the education system, the transport system, a religious system, a cultural system, the social welfare system, the socio-economic system and the family system. The research focused only on a small sample of caregivers who brought the patients to the clinic at the Pretoria Academic Hospital. Therefore, future research could be conducted to include more caregivers from different areas. The study concludes that caregivers caring for patients with haemophilia in rural areas face unique challenges because of the rarity of the disorder and the scarcity of resources. Most people in rural areas lack insight on bleeding disorders because of their cultural beliefs; as a result, they fail to be supportive of the patients and their caregivers. However, there are a few people who do understand the nature of haemophilia as a disorder when it is explained to them and therefore give the necessary support to caregivers and the patients. Haemophilia as a disorder is associated with an array of psychosocial challenges. It is concluded that social work intervention in haemophilia care can ensure that the psychosocial problems of caregivers caring for patients with haemophilia in rural areas are properly addressed. Copyright Social Work and Criminology Restricted Humanities 2013-09-09T07:23:38Z 2010-03-15 2013-09-09T07:23:38Z 2009-04-15 2008-06 2010-03-09 Dissertation Mosoma, Z 2008, The experiences of caregivers caring for patients with haemophilia in rural areas, MMSW dissertation, University of Pretoria, Pretoria, viewed yymmdd < http://upetd.up.ac.za/thesis/available/etd-03092010-201533 / > F10/141/gm http://hdl.handle.net/2263/30675 http://upetd.up.ac.za/thesis/available/etd-03092010-201533/ en © 2008, University of Pretoria. All rights reserved. The copyright in this work vests in the University of Pretoria. No part of this work may be reproduced or transmitted in any form or by any means, without the prior written permission of the University of Pretoria. application/pdf University of Pretoria |
| spellingShingle | UCTD Bloeding Dissiplinêre span Maatskaplike werker Caring Caregivers Haemophilia Patient Rural areas Experinces Social worker Disciplinary team Bleeding Treatment Behandeling Platteland Ondervindings Versorging Hemofilie Pasiënt Landelike gebiede Versorgers The experiences of caregivers caring for patients with haemophilia in rural areas |
| title | The experiences of caregivers caring for patients with haemophilia in rural areas |
| title_full | The experiences of caregivers caring for patients with haemophilia in rural areas |
| title_fullStr | The experiences of caregivers caring for patients with haemophilia in rural areas |
| title_full_unstemmed | The experiences of caregivers caring for patients with haemophilia in rural areas |
| title_short | The experiences of caregivers caring for patients with haemophilia in rural areas |
| title_sort | experiences of caregivers caring for patients with haemophilia in rural areas |
| topic | UCTD Bloeding Dissiplinêre span Maatskaplike werker Caring Caregivers Haemophilia Patient Rural areas Experinces Social worker Disciplinary team Bleeding Treatment Behandeling Platteland Ondervindings Versorging Hemofilie Pasiënt Landelike gebiede Versorgers |
| url | http://hdl.handle.net/2263/30675 http://upetd.up.ac.za/thesis/available/etd-03092010-201533/ |