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Exploring the information and support needs of South African parents with premature infants to inform a post-discharge parent support programme
Thesis (PhD (Augmentative and Alternative Communication))--University of Pretoria, 2021.
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| Format: | Thesis |
| Language: | English |
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University of Pretoria
2021
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| _version_ | 1867613578037559296 |
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| access_status_str | Open Access |
| author2 | Johnson, Ensa |
| author_browse | Johnson, Ensa |
| author_facet | Johnson, Ensa |
| collection | Thesis |
| dc_rights_str_mv | © 2019 University of Pretoria. All rights reserved. The copyright in this work vests in the University of Pretoria. No part of this work may be reproduced or transmitted in any form or by any means, without the prior written permission of the University of Pretoria. |
| description | Thesis (PhD (Augmentative and Alternative Communication))--University of Pretoria, 2021. |
| format | Thesis |
| id | oai:repository.up.ac.za:2263/80251 |
| institution | University of Pretoria (South Africa) |
| language | English |
| last_indexed | 2026-06-10T12:38:22.209Z |
| license_str | Other — see source repository |
| provenance_str_mv | Harvested via OAI-PMH from UPSpace — University of Pretoria Institutional Repository |
| publishDate | 2021 |
| publishDateRange | 2021 |
| publishDateSort | 2021 |
| publisher | University of Pretoria |
| publisherStr | University of Pretoria |
| record_format | dspace |
| source_str | UPSpace — University of Pretoria Institutional Repository |
| spelling | oai:repository.up.ac.za:2263/80251 Exploring the information and support needs of South African parents with premature infants to inform a post-discharge parent support programme Johnson, Ensa davis.susan1969@gmail.com Lubbe, Welma Davis-Strauss, Susan Lynn South African parents with premature infants UCTD Thesis (PhD (Augmentative and Alternative Communication))--University of Pretoria, 2021. Parents of premature infants have unique information and support needs regarding the caregiving of their premature infants after the initial discharge home from the hospital. These needs may only become evident after the discharge, which presents challenges that require additional social and professional support. Through my research I strived to determine the information and support needs of parents relating to the caregiving of their premature infants after the initial discharge home from the hospital. The main aim of my study was to inform a South African post-discharge parent support programme within the Developmental Systems Model theoretical framework. A four-phase qualitative descriptive design was employed. In Phase 1, an integrative literature review was conducted to determine the information and support needs of parents of premature infants following their initial discharge home from the hospital. Phase 2 explored the information and support needs of 25 South African parents regarding the caregiving of their premature infants by utilising a pilot study and four asynchronous online focus groups. In Phase 3 the data sources from Phases 1 and 2 were merged to develop and finalise ten recommendations that were utilised to develop the content of the parent support programme. Seven Early Childhood Intervention professionals were involved to ensure the recommendations were appropriate and contextual for South African parents. Fifteen South African parents were subsequently asked to validate and confirm the ten recommendations. The final phase (Phase 4) of the study comprised a parent validation survey with 17 South African parents, which ensured the appropriateness of the content for the South African post-discharge parent support programme. The contents, based on the findings of the four-phase study, will appropriately serve as the foundation for a South African parent support programme to be implemented as part of a future project. Keywords: caregiving, information needs, parents, post-discharge programme, premature infants, recommendations, support needs, South Africa. NRF Centre for Augmentative and Alternative Communication (CAAC) PhD (Augmentative and Alternative Communication) Restricted 2021-06-08T11:57:53Z 2021-06-08T11:57:53Z 2021-09 2021 Thesis *Davis-Strauss, SL 2021, Exploring the information and support needs of South African parents with premature infants to inform a post-discharge parent support programme, PhD thesis, University of Pretoria, Pretoria, viewed yymmdd http://hdl.handle.net/2263/31804 S2021 http://hdl.handle.net/2263/80251 en © 2019 University of Pretoria. All rights reserved. The copyright in this work vests in the University of Pretoria. No part of this work may be reproduced or transmitted in any form or by any means, without the prior written permission of the University of Pretoria. application/pdf University of Pretoria |
| spellingShingle | South African parents with premature infants UCTD Exploring the information and support needs of South African parents with premature infants to inform a post-discharge parent support programme |
| title | Exploring the information and support needs of South African parents with premature infants to inform a post-discharge parent support programme |
| title_full | Exploring the information and support needs of South African parents with premature infants to inform a post-discharge parent support programme |
| title_fullStr | Exploring the information and support needs of South African parents with premature infants to inform a post-discharge parent support programme |
| title_full_unstemmed | Exploring the information and support needs of South African parents with premature infants to inform a post-discharge parent support programme |
| title_short | Exploring the information and support needs of South African parents with premature infants to inform a post-discharge parent support programme |
| title_sort | exploring the information and support needs of south african parents with premature infants to inform a post discharge parent support programme |
| topic | South African parents with premature infants UCTD |
| url | http://hdl.handle.net/2263/80251 |