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Experiences of adolescents living with epilepsy in South Africa
Dissertation (MA (Psychology))--University of Pretoria, 2022.
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| Format: | Thesis |
| Language: | English |
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University of Pretoria
2023
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| _version_ | 1867613481472098304 |
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| access_status_str | Open Access |
| author2 | Wagner, Claire |
| author_browse | Wagner, Claire |
| author_facet | Wagner, Claire |
| collection | Thesis |
| dc_rights_str_mv | © 2022 University of Pretoria. All rights reserved. The copyright in this work vests in the University of Pretoria. No part of this work may be reproduced or transmitted in any form or by any means, without the prior written permission of the University of Pretoria. |
| description | Dissertation (MA (Psychology))--University of Pretoria, 2022. |
| format | Thesis |
| id | oai:repository.up.ac.za:2263/89184 |
| institution | University of Pretoria (South Africa) |
| language | English |
| last_indexed | 2026-06-10T12:36:50.231Z |
| license_str | Other — see source repository |
| provenance_str_mv | Harvested via OAI-PMH from UPSpace — University of Pretoria Institutional Repository |
| publishDate | 2023 |
| publishDateRange | 2023 |
| publishDateSort | 2023 |
| publisher | University of Pretoria |
| publisherStr | University of Pretoria |
| record_format | dspace |
| source_str | UPSpace — University of Pretoria Institutional Repository |
| spelling | oai:repository.up.ac.za:2263/89184 Experiences of adolescents living with epilepsy in South Africa Wagner, Claire zahrahmoosa.moosa7@gmail.com Cassimjee, Nafisa Moosa, Zahrah Hassim Epilepsy Adolescent South Africa Psychological Social Cognitive Interpretative phenomenological analysis UCTD Dissertation (MA (Psychology))--University of Pretoria, 2022. Several studies have highlighted the perspectives and insights of healthcare workers and caregivers involved in ensuring the well-being of adolescents with epilepsy. Research from the perspective of the adolescent living with epilepsy is, however, lacking, especially in the South African context. This qualitative study therefore aimed at exploring and understanding the experiences of adolescents living with epilepsy in South Africa, within an interpretative phenomenological framework. Semi-structured interviews were conducted online via Zoom with three adolescents diagnosed and living with epilepsy. The data was analysed using Interpretative Phenomenological Analysis (IPA) which allowed for the emergence of prominent themes and subordinate themes. The four main themes that emerged were: mental health challenges; cognitive challenges; treatment, support, and coping; and emotional insights. The findings of the study indicated that the participants experienced cognitive challenges such as memory problems which impaired their daily functioning and had an influence on academic performance. The findings further revealed that the participants experienced psychological challenges, such as anxiety, depression, and epilepsy-related fears. The experiences of these adolescents revealed similarities and unique differences in the many facets of their lives, from access to medical treatment, social and cognitive challenges, emotional and personal development, and support systems and how living with epilepsy shaped these experiences. These lived experiences in turn influenced the emotions, insights, and ambitions of these adolescents. The findings of this study provide insight into identifying and understanding the needs, the challenges, and the world view of these young people living with epilepsy in South Africa. The findings further highlight that cultural context, background, and personal factors may shape the experiences of these young people living with epilepsy; thus, a recommendation for future research in diverse cultural contexts is made by the researcher. Psychology MA (Psychology) Unrestricted 2023-02-07T07:11:24Z 2023-02-07T07:11:24Z 2023 2022 Dissertation * A2023 https://repository.up.ac.za/handle/2263/89184 en © 2022 University of Pretoria. All rights reserved. The copyright in this work vests in the University of Pretoria. No part of this work may be reproduced or transmitted in any form or by any means, without the prior written permission of the University of Pretoria. application/pdf University of Pretoria |
| spellingShingle | Epilepsy Adolescent South Africa Psychological Social Cognitive Interpretative phenomenological analysis UCTD Experiences of adolescents living with epilepsy in South Africa |
| title | Experiences of adolescents living with epilepsy in South Africa |
| title_full | Experiences of adolescents living with epilepsy in South Africa |
| title_fullStr | Experiences of adolescents living with epilepsy in South Africa |
| title_full_unstemmed | Experiences of adolescents living with epilepsy in South Africa |
| title_short | Experiences of adolescents living with epilepsy in South Africa |
| title_sort | experiences of adolescents living with epilepsy in south africa |
| topic | Epilepsy Adolescent South Africa Psychological Social Cognitive Interpretative phenomenological analysis UCTD |
| url | https://repository.up.ac.za/handle/2263/89184 |