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Complex decisions about tube feeding in advanced dementia : insights from a sample of South African speech-language therapists
Dissertation (MA (Speech-Language Pathology))--University of Pretoria, 2023.
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| Format: | Thesis |
| Language: | English |
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University of Pretoria
2023
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| _version_ | 1867613590213623808 |
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| access_status_str | Open Access |
| author2 | Pillay, Bhavani |
| author_browse | Pillay, Bhavani |
| author_facet | Pillay, Bhavani |
| collection | Thesis |
| dc_rights_str_mv | © 2023 University of Pretoria. All rights reserved. The copyright in this work vests in the University of Pretoria. No part of this work may be reproduced or transmitted in any form or by any means, without the prior written permission of the University of Pretoria. |
| description | Dissertation (MA (Speech-Language Pathology))--University of Pretoria, 2023. |
| format | Thesis |
| id | oai:repository.up.ac.za:2263/91486 |
| institution | University of Pretoria (South Africa) |
| language | English |
| last_indexed | 2026-06-10T12:38:33.924Z |
| license_str | Other — see source repository |
| provenance_str_mv | Harvested via OAI-PMH from UPSpace — University of Pretoria Institutional Repository |
| publishDate | 2023 |
| publishDateRange | 2023 |
| publishDateSort | 2023 |
| publisher | University of Pretoria |
| publisherStr | University of Pretoria |
| record_format | dspace |
| source_str | UPSpace — University of Pretoria Institutional Repository |
| spelling | oai:repository.up.ac.za:2263/91486 Complex decisions about tube feeding in advanced dementia : insights from a sample of South African speech-language therapists Pillay, Bhavani dbruwer1@gmail.com Kruger, Esedra Pullen, Danette UCTD Advanced dementia Feeding tube Speech-language therapist (SLT) Qualitative Online interview Humanities theses SDG-03 SDG-03: Good health and well-being Dissertation (MA (Speech-Language Pathology))--University of Pretoria, 2023. BACKGROUND : As advanced dementia progresses, individuals become increasingly dependent on health, social, and community care services, and feeding difficulties become common. Oropharyngeal dysphagia is prevalent in people with advanced dementia, and speech-language therapists (SLTs) may recommend tube feeding. However, a deeper understanding of SLTs’ practices, focused on dysphagia in advanced dementia, are needed. OBJECTIVE : To qualitatively describe insights and practices of a sample of South African SLTs, regarding feeding tube placement in people with advanced dementia. METHOD : Semi-structured interviews were conducted using an interview schedule containing nineteen open-ended questions. The study employed a qualitative design based on phenomenological principles. Eight SLTs, with a particular interest in working with advanced dementia, were recruited using purposive sampling. The data collected were analysed using inductive reflexive thematic analysis. RESULTS : Three main themes were identified: a) Factors influencing SLTs’ decisions for feeding tube placement in people with advanced dementia, b) Nature of clinical setting and SLTs’ decision making and c) SLTs’ considerations to improve the management of people with advanced dementia. Findings indicated that existing local palliative care guidelines were not employed by SLTs in decisions about tube feeding. Most participants did not recommend tube feeding during the end-of-life phase of advanced dementia. The perceived burden of care, experienced by healthcare professionals and families, influenced decisions about tube feeding. CONCLUSION : Decisions about feeding tube placement in advanced dementia is complex and require specialised teams. Caregiver involvement and promotion of patient autonomy is crucial. SLTs require support from local governing bodies for continued professional development and mentoring to improve ethical and evidence-based decision-making. Speech-Language Pathology and Audiology MA (Speech-Language Pathology) Unrestricted 2023-07-17T14:00:15Z 2023-07-17T14:00:15Z 2023-09 2023 Dissertation * S2023 http://hdl.handle.net/2263/91486 DOI: https://doi.org/10.25403/UPresearchdata.23694750.v1 https://doi.org/10.25403/UPresearchdata.23694750 en © 2023 University of Pretoria. All rights reserved. The copyright in this work vests in the University of Pretoria. No part of this work may be reproduced or transmitted in any form or by any means, without the prior written permission of the University of Pretoria. application/pdf University of Pretoria |
| spellingShingle | UCTD Advanced dementia Feeding tube Speech-language therapist (SLT) Qualitative Online interview Humanities theses SDG-03 SDG-03: Good health and well-being Complex decisions about tube feeding in advanced dementia : insights from a sample of South African speech-language therapists |
| title | Complex decisions about tube feeding in advanced dementia : insights from a sample of South African speech-language therapists |
| title_full | Complex decisions about tube feeding in advanced dementia : insights from a sample of South African speech-language therapists |
| title_fullStr | Complex decisions about tube feeding in advanced dementia : insights from a sample of South African speech-language therapists |
| title_full_unstemmed | Complex decisions about tube feeding in advanced dementia : insights from a sample of South African speech-language therapists |
| title_short | Complex decisions about tube feeding in advanced dementia : insights from a sample of South African speech-language therapists |
| title_sort | complex decisions about tube feeding in advanced dementia insights from a sample of south african speech language therapists |
| topic | UCTD Advanced dementia Feeding tube Speech-language therapist (SLT) Qualitative Online interview Humanities theses SDG-03 SDG-03: Good health and well-being |
| url | http://hdl.handle.net/2263/91486 https://doi.org/10.25403/UPresearchdata.23694750 |