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Communication, cognitive functioning, and feeding and swallowing information needs of caregivers of individuals diagnosed with alzheimer’s disease within a support group setting
Thesis (MSL&HT)--Stellenbosch University, 2022.
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| Format: | Thesis |
| Language: | en_ZA |
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Stellenbosch : Stellenbosch University
2022
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| _version_ | 1867613882040713216 |
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| access_status_str | Open Access |
| author | Le Roux, Carla |
| author2 | De Beer, Alida |
| author_browse | De Beer, Alida Le Roux, Carla |
| author_facet | De Beer, Alida Le Roux, Carla |
| author_sort | Le Roux, Carla |
| collection | Thesis |
| dc_rights_str_mv | Stellenbosch University |
| description | Thesis (MSL&HT)--Stellenbosch University, 2022. |
| format | Thesis |
| id | oai:scholar.sun.ac.za:10019.1/124969 |
| institution | Stellenbosch University (South Africa) |
| language | en_ZA |
| last_indexed | 2026-06-10T12:43:11.727Z |
| license_str | Other — see source repository |
| provenance_str_mv | Harvested via OAI-PMH from SUNScholar — Stellenbosch University Repository |
| publishDate | 2022 |
| publishDateRange | 2022 |
| publishDateSort | 2022 |
| publisher | Stellenbosch : Stellenbosch University |
| publisherStr | Stellenbosch : Stellenbosch University |
| record_format | dspace |
| source_str | SUNScholar — Stellenbosch University Repository |
| spelling | oai:scholar.sun.ac.za:10019.1/124969 Communication, cognitive functioning, and feeding and swallowing information needs of caregivers of individuals diagnosed with alzheimer’s disease within a support group setting Le Roux, Carla De Beer, Alida Bardien, Faeza Stellenbosch University. Faculty of Medicine and Health Sciences. Dept. of Health and Rehabilitation Sciences. Speech-Language and Hearing Therapy. Alzheimer's disease -- Patients -- South Africa -- Western Cape Alzheimer's disease -- South Africa -- Western Cape Alzheimer's disease -- Patients -- Home care -- South Africa -- Western Cape Alzheimer's disease -- Patients -- Care -- South Africa -- Western Cape UCTD Thesis (MSL&HT)--Stellenbosch University, 2022. ENGLISH SUMMARY: Background: The number of individuals with Alzheimer’s disease will rise significantly in the coming years. This is a concern as Alzheimer’s disease affects numerous functions within the scope of the speech-language therapist. However, due to the limited number of speech-language therapists in South Africa, individual speech and language therapy is not a viable option. Support groups may be a more optimal way of providing speech and language therapy service-related information. Objectives: The study aimed to determine the speech therapy-related information needs of caregivers of individuals with Alzheimer’s disease, as well as their preferred support group structure. The study further aimed to describe common speech and language therapy-related points of discussion at support groups and the current structure of support groups in the Western Cape. Method: A convergent parallel mixed method research design was used, and qualitative and quantitative data were collected simultaneously. Semi-structured interviews were conducted with caregivers of individuals with Alzheimer’s disease, whilst an online survey was used to collect data from support group facilitators. Results: The results indicated that caregivers had both directly stated, as well as indirectly stated information and support needs. Caregivers had more directly stated information and support needs about cognitive functioning than communication or feeding and swallowing. Their information and support needs were influenced by the current level of functioning of the individual with AD, caregivers’ perceptions about the features of AD and their management, as well as acceptance of these difficulties. Caregivers did, however, have more indirectly stated information needs about communication as well as feeding and swallowing. There were also discrepancies identified between caregivers’ support group structure preferences and the current support group structure in the Western Cape. Conclusion: The factors driving caregivers’ information and support needs guide the information provided at support groups. As much information and support needs are indirectly stated, these needs may likely not be expressed in support groups. Subsequently, caregivers’ knowledge about these areas of difficulty may remain limited. This may negatively affect caregiver understanding-and management of these difficulties. Furthermore, accessibility of support groups may be negatively impacted by the discrepancies between caregiver preferences and current support group structure. AFRIKAANSE OPSOMMING: Agtergrond: Die aantal individue met Alzheimer’s se siekte sal beduidend toeneem in die komende jare. Dit is kommerwekkend aangesien Alzheimer’s se siekte verskeie funksies binne die omvang van die spraak-taal terapeut se fokus affekteer. Weens die beperkte getal spraak-taal terapeute in Suid-Afrika, is individuele spraakterapie nie ‘n haalbare opsie nie. Ondersteuningsgroepe mag ‘n meer optimale manier wees vir die oordra van spraak- en taal terapie diens-verwante inligting. Doelwitte: Die studie poog om die spraakterapie-verwante inligtingsbehoeftes van versorgers van individue met Alzheimer’s se siekte, asook die ondersteuningsgroep struktuur wat hulle verkies, te bepaal. Die studie beskryf ook algemene spraakterapie-verwante besprekingspunte in ondersteuningsgroepe en die huidige struktuur van ondersteuningsgroepe in die Wes-Kaap. Metode: ‘n Konvergente parallelle gemengde metode navorsingsontwerp is gebruik en kwalitatiewe en kwantitatiewe data is gelyktydig versamel. Semi-gestruktureerde onderhoude is gevoer met versorgers van individue met Alzheimer’s se siekte, terwyl ‘n aanlyn opname gebruik is om data van ondersteuningsgroep fasiliteerders te versamel. Resultate: Die resultate dui aan dat versorgers beide direk-gestelde, asook indirek-gestelde inligtings- en ondersteuningsbehoeftes het. Versorgers het meer direk-gestelde inligting- en ondersteuningsbehoeftes oor kognitiewe funksionering as oor kommunikasie of voeding en sluk. Versorgers se inligting- en ondersteuningsbehoeftes is beïnvloed deur die huidige vlak van funksionering van die individu met Alzheimer’s se siekte, versorgers se persepsies oor die kenmerke van Alzheimer’s se siekte en die behandeling daarvan, asook aanvaarding van probleme. Indirek-gestelde inligtingsbehoeftes was meer oor kommunikasie asook voeding en sluk. Teenstrydighede tussen versorgers se ondersteuningsgroepstruktuur voorkeure en die huidige struktuur van ondersteuningsgroepe in die Wes-Kaap is ook identifiseer. Gevolgtrekking: Die faktore wat versorgers se inligting- en ondersteuningbehoeftes dryf, bepaal die inligting wat by ondersteuningsgroepe verskaf word. Aangesien inligting- en ondersteuningsbehoeftes dikwels indirek gestel word, word hierdie behoeftes moontlik nie in ondersteuningsgroepe uitgespel nie. Gevolglik kan versorgers se kennis van hierdie probleemareas beperk bly. Dit kan ‘n negatiewe effek op versorgers se begrip- en behandeling van hierdie probleme hê. Verder, weens die teenstrydighede tussen versorgers se voorkeure en die huidige ondersteuningsgroep struktuur, kan toeganklikheid van ondersteuningsgroepe negatief beïnvloed word. Masters 2022-03-11T09:49:46Z 2022-04-29T09:44:05Z 2022-03-11T09:49:46Z 2022-04-29T09:44:05Z 2022-04 Thesis http://hdl.handle.net/10019.1/124969 en_ZA Stellenbosch University x, 131 pages : illustrations, includes annexures application/pdf Stellenbosch : Stellenbosch University |
| spellingShingle | Alzheimer's disease -- Patients -- South Africa -- Western Cape Alzheimer's disease -- South Africa -- Western Cape Alzheimer's disease -- Patients -- Home care -- South Africa -- Western Cape Alzheimer's disease -- Patients -- Care -- South Africa -- Western Cape UCTD Le Roux, Carla Communication, cognitive functioning, and feeding and swallowing information needs of caregivers of individuals diagnosed with alzheimer’s disease within a support group setting |
| title | Communication, cognitive functioning, and feeding and swallowing information needs of caregivers of individuals diagnosed with alzheimer’s disease within a support group setting |
| title_full | Communication, cognitive functioning, and feeding and swallowing information needs of caregivers of individuals diagnosed with alzheimer’s disease within a support group setting |
| title_fullStr | Communication, cognitive functioning, and feeding and swallowing information needs of caregivers of individuals diagnosed with alzheimer’s disease within a support group setting |
| title_full_unstemmed | Communication, cognitive functioning, and feeding and swallowing information needs of caregivers of individuals diagnosed with alzheimer’s disease within a support group setting |
| title_short | Communication, cognitive functioning, and feeding and swallowing information needs of caregivers of individuals diagnosed with alzheimer’s disease within a support group setting |
| title_sort | communication cognitive functioning and feeding and swallowing information needs of caregivers of individuals diagnosed with alzheimer s disease within a support group setting |
| topic | Alzheimer's disease -- Patients -- South Africa -- Western Cape Alzheimer's disease -- South Africa -- Western Cape Alzheimer's disease -- Patients -- Home care -- South Africa -- Western Cape Alzheimer's disease -- Patients -- Care -- South Africa -- Western Cape UCTD |
| url | http://hdl.handle.net/10019.1/124969 |
| work_keys_str_mv | AT lerouxcarla communicationcognitivefunctioningandfeedingandswallowinginformationneedsofcaregiversofindividualsdiagnosedwithalzheimersdiseasewithinasupportgroupsetting |