Full Text Available
Note: Clicking the button above will open the full text document at the original institutional repository in a new window.
The quality of life of parents of children with epilepsy
Thesis (MA)--Stellenbosch University, 2002.
Saved in:
| Main Author: | |
|---|---|
| Other Authors: | |
| Format: | Thesis |
| Language: | en_ZA |
| Published: |
Stellenbosch : Stellenbosch University
2012
|
| Subjects: | |
| Tags: |
No Tags, Be the first to tag this record!
|
| _version_ | 1867614038889857024 |
|---|---|
| access_status_str | Open Access |
| author | Lalkhen, Nuruneesa |
| author2 | Spangenberg, J. J. |
| author_browse | Lalkhen, Nuruneesa Spangenberg, J. J. |
| author_facet | Spangenberg, J. J. Lalkhen, Nuruneesa |
| author_sort | Lalkhen, Nuruneesa |
| collection | Thesis |
| dc_rights_str_mv | Stellenbosch University |
| description | Thesis (MA)--Stellenbosch University, 2002. |
| format | Thesis |
| id | oai:scholar.sun.ac.za:10019.1/53152 |
| institution | Stellenbosch University (South Africa) |
| language | en_ZA |
| last_indexed | 2026-06-10T12:45:41.741Z |
| license_str | Other — see source repository |
| provenance_str_mv | Harvested via OAI-PMH from SUNScholar — Stellenbosch University Repository |
| publishDate | 2012 |
| publishDateRange | 2012 |
| publishDateSort | 2012 |
| publisher | Stellenbosch : Stellenbosch University |
| publisherStr | Stellenbosch : Stellenbosch University |
| record_format | dspace |
| source_str | SUNScholar — Stellenbosch University Repository |
| spelling | oai:scholar.sun.ac.za:10019.1/53152 The quality of life of parents of children with epilepsy Lalkhen, Nuruneesa Spangenberg, J. J. Stellenbosch University. Faculty of Arts and Social Sciences. Department of Psychology. Quality of life -- Parents Parents of chronically ill children -- Psychological aspects Chronically ill children -- Family relationships Parent and child -- Psychological aspects Epileptic children -- Parents Thesis (MA)--Stellenbosch University, 2002. ENGLISH ABSTRACT: The focus of the present review is the quality of life (QOL) of parents caring for a child with epilepsy. The review is informed by published books and articles available on the Psychlit and Medline databases. The paper provides an overview of epilepsy and the problems patients, particularly children, are confronted with. The important roles that parents fulfil in their child's life is followed by a discussion of the stress and burden experienced by parents caring for a child with epilepsy. Descriptions and definitions of the construct QOL are followed by reported research findings on the QOL of patients with epilepsy. The importance of the QOL of parents caring for a child with epilepsy is emphasized and this leads to an examination of existing research on the QOL of these parents. Research on the QOL of parents of children with epilepsy is limited despite the important roles parents fulfil in the life of their child with epilepsy and the potentially negative consequences of these additional roles for the child, the parents and the remainder of the family. Identification and an understanding of the dimensions of QOL of parents that are impacted upon by a child's epilepsy may produce improved treatment outcomes and QOL for children diagnosed and living with epilepsy. Recommendations for future research are included in the present review. AFRIKAANSE OPSOMMING: Die fokus van hierdie oorsig is die lewenskwaliteit van ouers wat 'n epileptiese kind versorg. Die oorsig is gebaseer op gepubliseerde boeke en artikels wat beskikbaar is op Psychlit en Medline databasisse. Die oorsig voorsien 'n omskrywing van epilepsie asook van die probleme wat pasiente, veral kinders, ondervind. Die belangrike rolle wat ouers in hul kinders se lewe speel word bespreek en dit word gevolg deur 'n bespreking van die stres en druk wat ouers wat epileptiese kinders versorg, ondervind. Beskrywings en definisies van die konstruk lewenskwaliteit word aangebied, gevolg deur 'n opgawe van navorsingsbevindinge oor die lewenskwaliteit van epiletiese pasiënte. Die belangrikheid van die lewenskwaliteit van ouers van 'n epileptiese kind word beklemtoon en dit lei tot 'n oorsig van huidige navorsing oor die lewenskwaliteit van hierdie ouers. Ten spyte van die belangrike rolle wat ouers in die lewe van hul epileptiese kind speel en die moontlike negatiewe gevolge van hierdie bykomende rolle vir die kind, die ouers en die ander familielede, is navorsing oor die lewenskwaliteit van ouers met epileptiese kinders beperk. Identifisering van en insig in die faktore wat 'n impak het op die lewenskwaliteit van ouers met 'n epileptiese kind, kan lei tot verbeterde behandelingresultate en hoër lewenskwaliteit vir kinders wat gediagnoseer word en wat met epilepsie saamleef. Aanbevelings vir toekomstige navorsing word ook in hierdie oorsig gemaak. Masters 2012-08-27T11:35:19Z 2012-08-27T11:35:19Z 2002-12 Thesis http://hdl.handle.net/10019.1/53152 en_ZA Stellenbosch University v, 55 pages application/pdf Stellenbosch : Stellenbosch University |
| spellingShingle | Quality of life -- Parents Parents of chronically ill children -- Psychological aspects Chronically ill children -- Family relationships Parent and child -- Psychological aspects Epileptic children -- Parents Lalkhen, Nuruneesa The quality of life of parents of children with epilepsy |
| title | The quality of life of parents of children with epilepsy |
| title_full | The quality of life of parents of children with epilepsy |
| title_fullStr | The quality of life of parents of children with epilepsy |
| title_full_unstemmed | The quality of life of parents of children with epilepsy |
| title_short | The quality of life of parents of children with epilepsy |
| title_sort | quality of life of parents of children with epilepsy |
| topic | Quality of life -- Parents Parents of chronically ill children -- Psychological aspects Chronically ill children -- Family relationships Parent and child -- Psychological aspects Epileptic children -- Parents |
| url | http://hdl.handle.net/10019.1/53152 |
| work_keys_str_mv | AT lalkhennuruneesa thequalityoflifeofparentsofchildrenwithepilepsy AT lalkhennuruneesa qualityoflifeofparentsofchildrenwithepilepsy |