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Thinking about intellectual disability care : an intersubjective approach

Thesis (PhD)--Stellenbosch University, 2016

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Main Author: Capri, Charlotte
Other Authors: Swartz, Leslie
Format: Thesis
Language:en_ZA
Published: Stellenbosch : Stellenbosch University 2016
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access_status_str Open Access
author Capri, Charlotte
author2 Swartz, Leslie
author_browse Capri, Charlotte
Swartz, Leslie
author_facet Swartz, Leslie
Capri, Charlotte
author_sort Capri, Charlotte
collection Thesis
dc_rights_str_mv Stellenbosch University
description Thesis (PhD)--Stellenbosch University, 2016
format Thesis
id oai:scholar.sun.ac.za:10019.1/98387
institution Stellenbosch University (South Africa)
language en_ZA
last_indexed 2026-06-10T12:45:00.328Z
license_str Other — see source repository
provenance_str_mv Harvested via OAI-PMH from SUNScholar — Stellenbosch University Repository
publishDate 2016
publishDateRange 2016
publishDateSort 2016
publisher Stellenbosch : Stellenbosch University
publisherStr Stellenbosch : Stellenbosch University
record_format dspace
source_str SUNScholar — Stellenbosch University Repository
spelling oai:scholar.sun.ac.za:10019.1/98387 Thinking about intellectual disability care : an intersubjective approach Capri, Charlotte Swartz, Leslie Stellenbosch University. Faculty of Arts and Social Sciences. Dept. of Psychology Disability rights -- South Africa Ethics care model People with mental disabilities -- South Africa Intellectual disability (ID) -- Intersubjectivity Human rights and disability -- South Africa Intellectual disability (ID) -- Relational psychotherapy UCTD Thesis (PhD)--Stellenbosch University, 2016 ENGLISH ABSTRACT : Of the many challenges facing persons with intellectual impairment in South Africa, disabling care continues to confront individuals who live and work with intellectual disability. Intellectual impairment care can be conceptualised as more than the performance of tasks involving giving and receiving, but can be understood as intersubjective and relational person-making exchanges that also unfold in broader socio-political spaces. Important voices have been marginalised in discourses on intellectual disability, and, in South Africa, traditional hegemonies of knowledge dominate thinking spaces that are yet to be taken up by the opinions of intellectually impaired individuals and care workers. Since experiences of care have been rarely voiced or validated by intellectually impaired individuals themselves, making and taking care should also refer to our capacity for reflection regarding our participation in many of its practices. This study opens up possibilities for fresh perspectives on psychiatric intellectual disability care by bringing together apparently disparate fields of relational psychoanalysis and intersubjectivity on the one hand, and contemporary models of disability on the other. The research collaboratively tracks the voices of its primary speakers, and touches on problematic aspects of care by foregrounding subjective experiences of living and working with psychiatric intellectual impairment, and by exploring the making of disabled and disabling care. It then becomes possible to see how dynamics of psychiatric intellectual disability care can both complicate and be addressed by a relational and intersubjective conceptualisation of ethical care. It was the task of the researcher, as scribe of this study, to facilitate conditions in which expert voices on intellectual disability care could be raised. In such intersubjective spaces the experience of impairment is no longer simply given or bestowed, but voiced by the real experts – those who live and work with intellectual impairment in a disabling world. AFRIKAANSE OPSOMMING : Te midde van vele uitdagings wat mense met intellektuele gestremdheid in Suid-Afrika in die gesig staar, word individue wat leef en werk met intellektuele gestremdheid voortdurend met bestremmende sorg gekonfronteer. Intellektuele gestremdheidsorg kan gekonseptualiseer word as meer as die blote uitvoering van take wat die gee en neem van sorg behels, maar kan verstaan word as intersubjektiewe en relasionele persoon-skeppende uitruilings wat ook in breër sosio-politieke ruimtes ontvou. Belangrike stemme word gemarginaliseer in intellektuele gestremdheid diskoerse, en, in Suid-Afrika, word dink-ruimtes wat ingeneem moet word deur die menings van intellektueel gestremde individue en sorgwerkers steeds deur tradisionele kennishegemonieë oorheers. Sedert ervaringe van sorg selde uitgespreek of bekragtig word deur intellektueel gestremde individue hulself, hoort sorgskepping en sorgneming ook te verwys na ons kapasiteit vir besinning rakende ons aandeel in menige sorgpraktyke. Hierdie studie stel moontlikhede voor vir vars perspektiewe insake psigiatriese intellektuele gestremdheidsorg deur klaarblyklik uiteenlopende velde van relasionele intersubjektiwiteit aan die een kant, en kontemporêre modelle van gestremdheid aan die ander, te vereenselwig. Deur gesamentlik die stemme van primêre sprekers na te spoor en problematiese aspekte van sorg aan te spreek, bring hierdie navorsing subjektiewe ervaringe van leef en werk met psigiatriese intellektuele gestremdheid tot die voorgrond terwyl die skep van bestremmende sorg verken word. Dit word dan moontlik om te sien hoe die dinamiek van psigiatriese intelektuele gestremdheidsorg ‘n relasionele en intersubjektiewe konseptualisering van etiese sorg kan kompliseer, maar ook kan aanspreek. Dit was die taak van die navorser, as skrywer van die studie, om omstandighede te fasiliteer waarin deskundige intellektuele gestremdheidsorg stemme gelig kon word. In sulke intersubjektiewe ruimtes word die ervaring van gestremdheid nie meer eenvouding gegee of gegun nie, maar deur die werklike kenners uitgespreek – deur diegene wat met intellektuele gestremdheid leef en werk in ‘n bestremmende wêreld. Doctoral 2016-03-09T14:13:10Z 2016-03-09T14:13:10Z 2016-03 Thesis http://hdl.handle.net/10019.1/98387 en_ZA Stellenbosch University xii, 320 pages : illustrations (mainly colour) application/pdf Stellenbosch : Stellenbosch University
spellingShingle Disability rights -- South Africa
Ethics care model
People with mental disabilities -- South Africa
Intellectual disability (ID) -- Intersubjectivity
Human rights and disability -- South Africa
Intellectual disability (ID) -- Relational psychotherapy
UCTD
Capri, Charlotte
Thinking about intellectual disability care : an intersubjective approach
title Thinking about intellectual disability care : an intersubjective approach
title_full Thinking about intellectual disability care : an intersubjective approach
title_fullStr Thinking about intellectual disability care : an intersubjective approach
title_full_unstemmed Thinking about intellectual disability care : an intersubjective approach
title_short Thinking about intellectual disability care : an intersubjective approach
title_sort thinking about intellectual disability care an intersubjective approach
topic Disability rights -- South Africa
Ethics care model
People with mental disabilities -- South Africa
Intellectual disability (ID) -- Intersubjectivity
Human rights and disability -- South Africa
Intellectual disability (ID) -- Relational psychotherapy
UCTD
url http://hdl.handle.net/10019.1/98387
work_keys_str_mv AT capricharlotte thinkingaboutintellectualdisabilitycareanintersubjectiveapproach