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‘I Didn't Even Associate the Two Together at All’: A Qualitative Study of ‘Information Work’ Undertaken by Parents and Their Children With Epilepsy to Make Sense of Sleep and Seizures

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Published in:Health Expectations
Format: Online Article RSS Article
Published: 2026
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container_title Health Expectations
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journal_source_facet Health Expectations
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spellingShingle ‘I Didn't Even Associate the Two Together at All’: A Qualitative Study of ‘Information Work’ Undertaken by Parents and Their Children With Epilepsy to Make Sense of Sleep and Seizures
Health Facilities and Administration
General
Health Facilities and Administration
sub_discipline_display General
sub_discipline_facet General
subject_display Health Facilities and Administration
General
Health Facilities and Administration
subject_facet Health Facilities and Administration
General
Health Facilities and Administration
title ‘I Didn't Even Associate the Two Together at All’: A Qualitative Study of ‘Information Work’ Undertaken by Parents and Their Children With Epilepsy to Make Sense of Sleep and Seizures
title_alt 'Ni siquiera asocié los dos en absoluto': un estudio cualitativo del 'trabajo de información' realizado por padres y sus hijos con epilepsia para dar sentido al sueño y las convulsiones
'Je n'ai même pas associé les deux du tout' : une étude qualitative du 'travail d'information' entrepris par les parents et leurs enfants épileptiques pour donner un sens au sommeil et aux crises
'Eu nem associei os dois': Um Estudo Qualitativo do 'Trabalho de Informação' Realizado por Pais e seus Filhos com Epilepsia para Entender o Sono e as Crises
title_auth ‘I Didn't Even Associate the Two Together at All’: A Qualitative Study of ‘Information Work’ Undertaken by Parents and Their Children With Epilepsy to Make Sense of Sleep and Seizures
title_es_txt 'Ni siquiera asocié los dos en absoluto': un estudio cualitativo del 'trabajo de información' realizado por padres y sus hijos con epilepsia para dar sentido al sueño y las convulsiones
title_fr_txt 'Je n'ai même pas associé les deux du tout' : une étude qualitative du 'travail d'information' entrepris par les parents et leurs enfants épileptiques pour donner un sens au sommeil et aux crises
title_full ‘I Didn't Even Associate the Two Together at All’: A Qualitative Study of ‘Information Work’ Undertaken by Parents and Their Children With Epilepsy to Make Sense of Sleep and Seizures
title_fullStr ‘I Didn't Even Associate the Two Together at All’: A Qualitative Study of ‘Information Work’ Undertaken by Parents and Their Children With Epilepsy to Make Sense of Sleep and Seizures
title_full_unstemmed ‘I Didn't Even Associate the Two Together at All’: A Qualitative Study of ‘Information Work’ Undertaken by Parents and Their Children With Epilepsy to Make Sense of Sleep and Seizures
title_pt_txt 'Eu nem associei os dois': Um Estudo Qualitativo do 'Trabalho de Informação' Realizado por Pais e seus Filhos com Epilepsia para Entender o Sono e as Crises
title_short ‘I Didn't Even Associate the Two Together at All’: A Qualitative Study of ‘Information Work’ Undertaken by Parents and Their Children With Epilepsy to Make Sense of Sleep and Seizures
title_sort ‘i didn't even associate the two together at all’: a qualitative study of ‘information work’ undertaken by parents and their children with epilepsy to make sense of sleep and seizures
topic Health Facilities and Administration
General
Health Facilities and Administration
url https://onlinelibrary.wiley.com/doi/10.1111/hex.70763?af=R