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“I’d go on a hike with my kids… that would make me feel so happy.” Recognising what people with haemophilia B identify as meaningful when considering personal goals and the potential for gene therapy
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| Published in: | Journal of Haemophilia Practice |
|---|---|
| Format: | Online Article RSS Article |
| Published: |
2025
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| Subjects: | |
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| _version_ | 1864030188778553344 |
|---|---|
| collection | WordPress RSS FRELIP Feed Integration |
| container_title | Journal of Haemophilia Practice |
| description | |
| discipline_display | Natural Sciences |
| discipline_facet | Natural Sciences |
| format | Online Article RSS Article |
| genre | Journal Article |
| id | rss_article:20018 |
| institution | FRELIP |
| journal_source_facet | Journal of Haemophilia Practice |
| publishDate | 2025 |
| publishDateSort | 2025 |
| record_format | rss_article |
| spellingShingle | “I’d go on a hike with my kids… that would make me feel so happy.” Recognising what people with haemophilia B identify as meaningful when considering personal goals and the potential for gene therapy Biology Natural Sciences — Life Sciences Natural Sciences |
| sub_discipline_display | Natural Sciences — Life Sciences |
| sub_discipline_facet | Natural Sciences — Life Sciences |
| subject_display | Biology Natural Sciences — Life Sciences Natural Sciences Biology Natural Sciences — Life Sciences Natural Sciences |
| subject_facet | Biology Natural Sciences — Life Sciences Natural Sciences |
| title | “I’d go on a hike with my kids… that would make me feel so happy.” Recognising what people with haemophilia B identify as meaningful when considering personal goals and the potential for gene therapy |
| title_auth | “I’d go on a hike with my kids… that would make me feel so happy.” Recognising what people with haemophilia B identify as meaningful when considering personal goals and the potential for gene therapy |
| title_full | “I’d go on a hike with my kids… that would make me feel so happy.” Recognising what people with haemophilia B identify as meaningful when considering personal goals and the potential for gene therapy |
| title_fullStr | “I’d go on a hike with my kids… that would make me feel so happy.” Recognising what people with haemophilia B identify as meaningful when considering personal goals and the potential for gene therapy |
| title_full_unstemmed | “I’d go on a hike with my kids… that would make me feel so happy.” Recognising what people with haemophilia B identify as meaningful when considering personal goals and the potential for gene therapy |
| title_short | “I’d go on a hike with my kids… that would make me feel so happy.” Recognising what people with haemophilia B identify as meaningful when considering personal goals and the potential for gene therapy |
| title_sort | “i’d go on a hike with my kids… that would make me feel so happy.” recognising what people with haemophilia b identify as meaningful when considering personal goals and the potential for gene therapy |
| topic | Biology Natural Sciences — Life Sciences Natural Sciences |
| url | https://sciendo.com/article/10.2478/jhp-2025-0001 |