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For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health‐Related Quality of Life in Rare Liver Diseases

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Published in:Health Expectations
Format: Online Article RSS Article
Published: 2026
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container_title Health Expectations
description
discipline_display Health Facilities and Administration
discipline_facet Health Facilities and Administration
format Online Article
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genre Journal Article
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journal_source_facet Health Expectations
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publishDate 2026
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spellingShingle For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health‐Related Quality of Life in Rare Liver Diseases
Health Facilities and Administration
General
Health Facilities and Administration
sub_discipline_display General
sub_discipline_facet General
subject_display Health Facilities and Administration
General
Health Facilities and Administration
Health Facilities and Administration
General
Health Facilities and Administration
subject_facet Health Facilities and Administration
General
Health Facilities and Administration
title For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health‐Related Quality of Life in Rare Liver Diseases
title_auth For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health‐Related Quality of Life in Rare Liver Diseases
title_full For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health‐Related Quality of Life in Rare Liver Diseases
title_fullStr For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health‐Related Quality of Life in Rare Liver Diseases
title_full_unstemmed For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health‐Related Quality of Life in Rare Liver Diseases
title_short For Me, Quality of Life Is When I Get Through the Day Without Thinking: I Won't Make It: A Participatory Qualitative Study of Health‐Related Quality of Life in Rare Liver Diseases
title_sort for me, quality of life is when i get through the day without thinking: i won't make it: a participatory qualitative study of health‐related quality of life in rare liver diseases
topic Health Facilities and Administration
General
Health Facilities and Administration
url https://onlinelibrary.wiley.com/doi/10.1111/hex.70721?af=R