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Beyond the diagnosis of cystic fibrosis: a study of disease-related knowledge in patients and their families

A cross-sectional survey was conducted among 60 families with a child with cystic fibrosis (CF) to assess their medical knowledge of the illness, their subjective understanding of the patient's present and future health, how much they wanted to be told about the illness, their information needs and...

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Bibliographic Details
Main Author: Henley, Lesley D
Other Authors: Molteno, Chris
Format: Thesis
Language:English
Published: Department of Health Sciences Education 2026
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