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Beyond the diagnosis of cystic fibrosis: a study of disease-related knowledge in patients and their families
A cross-sectional survey was conducted among 60 families with a child with cystic fibrosis (CF) to assess their medical knowledge of the illness, their subjective understanding of the patient's present and future health, how much they wanted to be told about the illness, their information needs and...
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| Format: | Thesis |
| Language: | English |
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Department of Health Sciences Education
2026
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